B2934 - An ethical and technical framework for linking social media data in UK cohorts - 17/08/2017
B number:
B2934
Principal applicant name:
Oliver Davis | MRC Integrative Epidemiology Unit at the University of Bristol (UK)
Co-applicants:
Dr Claire Haworth, Dr Andrew Boyd, Dr Lisa Calderwood, Dr Luke Sloan
Title of project:
An ethical and technical framework for linking social media data in UK cohorts
Proposal summary:
Information derived from social media platforms such as Twitter and Facebook has the potential to greatly increase our understanding of the origins and consequences of mental health and disorder. However, we need to make sure that when researchers link social media data in cohorts such as Children of the 90s this is done in a secure and ethical way that takes into account the preferences of the participants. We will engage with cohort participants and leaders to work out what is and what is not acceptable in linking social media data, and develop an ethical and technical system for doing this that can be replicated across UK cohort studies.
Date proposal received:
Wednesday, 16 August, 2017
Date proposal approved:
Thursday, 17 August, 2017
Keywords:
Mental health - Psychology, Psychiatry, Cognition, Addiction - e.g. alcohol, illicit drugs, smoking, gambling, etc., Behaviour - e.g. antisocial behaviour, risk behaviour, etc., Developmental disorders - autism, Eating disorders - anorexia, bulimia, Mental health, Computer simulations/modelling/algorithms, Qualitative study, Statistical methods, Cohort studies - attrition, bias, participant engagement, ethics, Communication (including non-verbal), Development, Environment - enviromental exposure, pollution, Methods - e.g. cross cohort analysis, data mining, mendelian randomisation, etc., Psychology - personality, Social science, Speech and language, Statistical methods