B2280 - Non-patient recruitment into research studies by genotype A new ethical challenge or same-old story - 07/08/2014

B number: 
B2280
Principal applicant name: 
Dr Frances Butcher (Not used 0, Not used 0)
Co-applicants: 
Dr Nic Timpson (University of Bristol, UK), Prof Richard Huxtable (University of Bristol, UK), Dr Helen Lambert (Not used 0, Not used 0)
Title of project: 
Non-patient recruitment into research studies by genotype: A new ethical challenge or same-old story?
Proposal summary: 

AIMS

  1. Investigating how participants interviewed draw upon different influences, perceptions and ethical reasoning in discussing issues regarding recruitment to RBG studies.

  1. Exploring the degree which participants suggest increased or decreased disclosure of individual genetic information, including anticipated and incidental findings, would affect their views on these studies and willingness to participate/work in these areas.

  1. Using specific case studies of current or planned ALSPAC RBG studies to aid participants in clarifying and challenging their own views on RBG.

  1. Outlining the identified issues and opinions on best practice in the form of a written set of principles, with the aim to inform future work in this area.
Date proposal received: 
Monday, 4 August, 2014
Date proposal approved: 
Thursday, 7 August, 2014
Keywords: 
Ethics, Qualitative Research
Primary keyword: 
Recall By Genotype