The Wellcome Trust has commissioned Ipsos MORI to undertake qualitative social research to explore the attitudes of patients, the public, cohort participants and healthcare professionals around commercial organisations accessing health, biomedical and genetic data. We would like to recruit up to 20 ALSPAC cohort participants to form the 'cohort' demographic for this research.

Aim: The aim is to understand attitudes around commerical access and identify governance, safeguarding and communications actions that could help: improve the trustworthiness of research uses and protections of data; and enable public trust in access to data to be developed over time. We are interested to establish whether cohort participants' attitudes differ to those of patients and the general public.